So…can I tell you something?
I’m disabled. There. I said it. It’s not a thing that I want to have been said.
And, no offense to you, it’s not a thing that I want to tell you.
It’s not a thing that I want to be true.
During the spring and summer I had quite a few doctor appointments and tests, and I found myself struggling to get to them.
Of course I didn’t want to go to them, who would? I also repeatedly found myself at the far end of the incredibly long parking lot at Heywood Hospital, trying to figure out how to get the the front door, and in the case of my pain doctor’s office, all the way through the hospital.
I had been using a cane, and that helped. What would have helped even more would’ve been a handicap placard. With my face on it. I think my late mother-in-love’s placard is still floating around my car but I’m a bit of a paranoid rule follower to go that route.
I need a handicap placard with my name on it. I asked my doctor to fill out the forms and she did. My clinical diagnosis is fibromyalgia and osteoarthritis. The duration of the placard to be issued? She placed a big, black check in the “permanent” box.
Well, dang.
I know it’s going to be okay. I have a deep and powerful sense of God’s purpose for me, so it’s not that I feel useless.
Having cared for my parent-in-loves to the end of their lives, I knew without a doubt how inherently valuable and precious they were, and that caring for them was a privilege. Not that it was always easy, I’m not going all Pollyannaish here. It was worth it. They were worth it. God installed that straight into my heart for them, and so, lo and behold, it’s also there for me.
I think it’s my pride. Brian bought me a pretty cane. I need it for longer walks. I’m trying to work up the gumption to go for a walk in my neighborhood with it.
It’ll happen.
I am not powerless. I do many things to strengthen my body, and to make my gut happy, because there’s a incredible ecosystem in there and it influences so many places in the body that it has been dubbed “the second brain.”
I did manage to heal my gut from chronic diarrhea, which I’ve had for over nine radiation therapy for uterine cancer. I used a combination of probiotics, hooray for kimchi and kefir, and lots of fiber to keep the probies well fed.
I am not powerless. There are ebbs and flows to my pain and weakness. I have options. Choices. Avenues. Solutions.
I am also disabled.
There. I said it.



alk about self care often, especially with my three daughters. We seem to always be working on ways to deal with anxiety and the stressors of daily life. One thing that I think we’ve all agreed on is that true self-care has to be more than a pumpkin spice latte or a walk in the woods, as lovely as those things are.